After 4 years of tears, of heart ache and fear…

After 3 heart surgeries, 1 stomach surgery

After 28 days in the hospital…
Countless stitches and blood draws…
After watching Sleeping Beauty 109x in the last 8 days…

1 pkg of M&Ms to use as bribery for medicine taking…

I got to walk out of this hospital. With a beautiful healthy, rosy cheeked little girl who now has pink fingers and toes and a gorgeous complexion. While I knew she was “blue”, and they told me I’d be amazed, I am FLOORED at how gorgeously pink she is.

Her spirit is still intact. She cries when they poke her and yet says thank you when they are done. So many people have complimented us on what a great job we’ve done with her. I don’t believe it was us … it was all God’s doing. She was meant to be here and we just gave her a chance to live.

We used to think oxygen levels of 80 – 83 were high. Today the monitor was beeping … why? Because she was hitting 100%. HA! To have it complain about 100 … who’d have thought it?

God is good. God is GREAT. My beautiful child, the one I was told to terminate because she would be so sickly and have all these problems … she’s came home today 9 days post surgery and she finally belongs to us.

Last night Dr. Heller stopped by and hugged me … I got choked up when I said “Thank You” because it really isn’t enough to say how grateful we are for her. There aren’t words available to say how grateful I am to that woman. How do you say thank you for the gift of your child’s life? I mean really … Thank You is nothing.

I haven’t really cried yet. I thought I would lose it pulling into the driveway. I got choked up when Maddie walked in the door and hugged me “I missed you so much!”. We’re a complete family – today is the first day of the rest of our lives!!!

6 thoughts on “HOME

  1. I am so happy for all of you. What a little fighter! What a glorious day!

  2. Wow, I had previously read that Olivia’s fontan was coming up and came back to check and missed it all. I’ve read through her surgery journey. What a little gorgeous trooper she was and is!! I’m so glad you’re on this side. It’s glorious over here as you’ll soon discover in the many years ahead. Prayers for continued recovery at HOME.

    Big hugs to all the family
    Jackie, Joel (HRHS-17) & Lisa

  3. This post gives me such great hope for when Abby has her Fontan next year. Thank you for this. I’m sure you know how important hope for the future is for our heart babies. I hope her infection clears up soon!

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