I read this on another blog I frequent: . Emma Kate isn’t here yet but Bethany and I have been corresponding. Please stop by if you can and lend them some of that amazing support you’ve given us.
Anyway, here’s the story of the Angel’s Heart. Be prepared and have some tissues ready…
It’s a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus “I don’t want to leave, I like it here, and I will miss you”. He reassures the scared little angel that everything will be okay, and that she is just going for a visit. She is still not swayed on this idea. So Jesus kneels down, and says, “How about if you leave half of your heart here with me and take the other half with you, will that be okay?” The angel smiles and says, “I guess that will work”. But the little angel is still a little scared. She asks, “Will I be okay with only half of my heart?” Jesus replies, “Of course you will, I have other angels there that will help out, and you will be fine.” Then Jesus gives the angel more details about his plan. He says “When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart.” “Enjoy your time with your family, play and laugh everyday.” “And when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves.”
Where has the time gone? My baby girl is FOUR!
We had a great birthday weekend – because in our family we celebrate birthdays for weeks on end. Friday Olivia had her birthday party at Diana’s. At 10AM Valentine the Clown came to play with the kids, do balloon animals and face paint. After nap, we had cupcakes and presents.
Saturday morning Olivia crawled into my bed at 6:20 for her birthday snuggles. I cannot believe how big she’s getting. Her long legs now go past my knees when I snuggle her. We took the girls to the Beardsley Zoo for the afternoon. They had a BALL and it was the perfect practice for Florida heat because it was HOT! On our way back we stopped by Nana & Poppy’s house so they could wish her a happy birthday.
Yesterday was the 4th anniversary of Olivia’s first heart surgery. We’ve come a LONG way in 4 years.
Arnie, Maddie & I gave Olivia two dresses for her birthday. She is so easy to please :). Of course their true presents will be given on Saturday when they are told we’re going to Disney World. 28 days from today!!
Someone shared an article from the Boston paper with me. A piece that truly touched my heart was this:
That’s what no one tells you when you have a child who is not perfect. That love changes everything. That love propels you from the bed to the cradle in the middle of the night. That love is why you sing even when you’re bone tired. That love is what fills your heart with pride and your eyes with tears, sometimes many times. That love is the reason all parents, even parents whose kids have challenges that seem burdensome and overwhelming to everyone else, say with certainty, “I wouldn’t trade my child for any one else’s.”
As rough a road we have had, I wouldn’t have it any other way. And honestly, the road has had a few speed bumps but it’s not a bad road to be on at all.
Happy Birthday sweet baby girl! We love you with everything inside us and beyond.
I’ve been avoiding this. Not that it’s “bad” but just typing it out makes it more real.
Three months ago today Olivia had her fontan. Three months ago…
I’m behind in the updates so I apologize for this being all over the place.
Yesterday I took Olivia for her INR blood test. Olivia rocks and they love her there!
In the afternoon I got a call from Karen. Olivia INR level was 1.54. :::Sigh::: It’s just so confusing because we’re giving her the correct dosage. The plan is now to give her 3mg daily (1.5ml).
The good news is that we’re less than a month away from saying “good bye” to Coumodin! June 24 is our last day taking it. Karen said we have one more blood draw – which we’ll do on June 10.
Our Little Hearts picnic is this weekend so be sure and stop by early next week for some updated pictures!
Here are some pics:
The actual day
“Dress Rehearsal” – making sure everything went together.
Greetings from Waltham, MA. I’m here for training this week and of course one of the girls has to be sick when Mama’s away!
The unlucky child this time is Maddie – our child with the immunity of steel. She started a fever on Saturday afternoon right after making her first communion. Sunday it was up to 103. Monday she was ok but not 100% so Arnie took her to see Dr. Friedman at 4:15pm. She was diagnosed with a sinus infection. Today she’s feeling almost 100% but woke up with a slight fever so Arnie stayed home with the girls.
Olivia had her INR level tested on Friday and it came back at 2.1!!! PERFECTION! We have to go back on May 30 for a retest. What a relief!
Prayers are needed for two of our heart friends.
First is our friend Sammy who is having his fontan tomorrow in Boston. Ironically I’m here in the Boston area so I’m going to try and get over to see them either tomorrow or on Thursday. Erika’s been a wonderful source of support for me and I’ll be happy to return the favor.
Second is for our friend who is having some issues with lower than expected O2 levels post Fontan. His doctors have decided he needs to have his fenestration closed. A fenestration is a small hole that was created in his heart during his Fontan surgery. (Note: Olivia doesn’t have a fenestration as Dr. Mello does a different type of surgery than they do up here in Boston). His mom Ruth describes it better than I do.
Please stop by both websites to offer your support and prayers.
Please keep both families in your prayers.