Olivia at 8 months

An Olivia update

No synagis shot today as the insurance company had still not paid the pharmacy providing us with the medication.  The company in turn didn’t bother sending the meds. Unfortunately Arnie and I didn’t realize it until the visiting nurse arrived today.  Ugh.  After phone calls to both the insurance company and the pharmacy AND a fax to the pharmacy proving they were paid for January’s medications (not November or December, but that’s another issue), the pharmacy then agreed to ship out the medication for tomorrow.  It all boils down to a coding issue – the pharmacy is submitting it as an unclassified drug and the insurance company keeps denying it.  Ah, the joys of insurance these days…

Onto better news:
Olivia is 8 months old!  She says MAMA and DADA (Dada was first but that’s because she was brainwashed from an early age ).

Her second tooth started to pop through on March 19. It is the bottom right.  And the bottom left is now up enough that you can see it when she smiles.

She LOVES to stand.  Stand her in front of the coffee table and she will stand there for a very long time – most likely banging her hands on the table and laughing.  She is also trying to pull herself up to a standing position.  It won’t be long now!

On the morning of March 20th, Arnie went in to get Olivia out of her crib. She had somehow gotten herself to a sitting position!  We haven’t seen her do it since so we’re not quite sure how that happened.

She’s still not crawling but can get herself around a room pretty fast!  This morning she was pushing one of her toys around the room and then scooting up behind it.  Push and scoot, push and scoot.

Olivia starts full time daycare on April 4!

I will update again next week with Olivia’s stats after her synagis shot.

Synagis shot / Olivia happenings

Olivia had her synagis shot today. She weighed 15 lbs, 14.5 oz! Heart rate was 138. Resp rate was 48.

Olivia is starting to MOVE on the floor. She’s rolling like a wild woman and can maneuver herself around the floor. Just yesterday Arnie had placed her on her mat and walked away for a minute. When he came back, she had moved 4 feet and had the mat on top of herself! Time to put those baby gates back up!

Olivia is sleeping through the night – finally. She has been either sleeping until 7AM or she’ll wake up at 4AM for a bottle. She likes to sleep on her belly or her side.

Olivia loves her big sister! She just lights up and laughs whenever Maddie Rose is around and paying attention to her. She likes to sit in her high chair and keep Maddie company while Maddie eats dinner.

We started cheerios this week with Olivia. She has mastered picking them up – but she doesn’t seem to be fond of the taste of them.

Eating: Olivia takes three jars of stage 2 baby food a day. She eats pretty much anything – however is still not a fan of the green veggies (she will gag terribly).

Olivia is starting to outgrow her 3-6 month clothing. She still wears size 2 diapers.

Next and FINAL synagis shot for the season is March 24 at 11:45AM.

Merry Christmas!

Merry Christmas!

I guess it’s been a long time since I’ve updated!

Olivia had a early 6 month checkup on December 21.  She weighs 13 lbs, 10 oz!  She received her 6 month shots along with her synagis shot that day.

We had a wonderful, magical Christmas and thoroughly enjoyed our time with our princesses.  To think a year ago we didn’t even know what was ahead … this year has been a bumpy road but we’re so thankful our angel is happy and healthy.

Olivia is trying so hard to sit up on her own. It won’t be much longer.  She’s also this-close to laughing out loud.  She loves her big sister Maddie Rose and they have a ball together!

Olivia loves her fruits – she eats bananas, pears (her favorite), applesauce and peaches.  She’s had oatmeal cereal as well. We’ve tried carrots, squash, sweet potatoes and most recently green beans which were NOT a hit.

We’re still waking up between one and two times a night.  Hopefully this will end soon as Olivia has been getting more formula (Alimentum).  I’m still pumping but my supply is quickly dwindling.

We hope everyone has a wonderful and HEALTHY 2005.

Day 3 in the PICU / Happy 4 month birthday Miss O

Clotting issue seemed to have corrected itself with the vitamin K shot.  Dr. Mello removed the RA line.  The last chest tube will be removed later today.

Diane and Kerry were nurses today.

Her arterial line was removed at 8:30AM.  They took her off oxygen as well.

Got her synagis shot around noon time.  Decided to send her home on vitamins to handle vitamin K deficiency.

Around 2pm we were sent to the 7th floor.  Cheryl was our nurse.

Quiet afternoon / evening. Olivia seems to be developing a cold and was suctioned a few times.

RSV shot scheduling

Arnie got a call yesterday from Alison from Interim Healthcare regarding the scheduling of Olivia’s next RSV shot. They wanted to do this on November 15th. Arnie mentioned that Olivia was scheduled to have surgery the next day (possibly) but if that was ok with them it was ok with us.

Alison called back this morning to say that Dr. Mello’s office says No vaccines for four weeks before or after surgery :huh. We are scheduled to go into Dr. Friedman’s office next week for her 4 month checkup.

So I called Dr. Mello’s office and questioned this – as Olivia had her hepatitis B vaccine one week after surgery last time. Apparently they will evaluate her recovery and she can have her vaccines after he gives the green light.

I then called Dr. Friedman’s office and talked to them about it. Dr. Friedman is going to call Dr. Mello’s office to see if they can put the RSV shot in her IV after surgery. I requested that we KEEP next week’s appointment as a pre-Operative appointment / weight check. They moved our appointment to 9:15AM so we’ll get in a room before any of the “sickies” get in.

  • November 10: Dr. Friedman’s office for 4 month checkup minus shots and pre operative appointment
  • RSV and 4 month vaccinations held off until after surgery when Dr. Mello gives the green light.

This stuff just makes my head spin.

8 week checkup

It was a 10 week checkup but still.

Olivia now weighs 10 lbs, 3 oz and is 22.25″ long! She’s gained an entire pound in the last month.  As far as charts go, she’s in the 40th percentile for height and weight which is perfect. Dr. Friedman said Olivia’s heart is allowing her body to grow as to what her genetic makeup wants her to be.

And speaking of genetics, we finally got the genetic test results back thanks to a lot of hard work and some magic by one of our very special angels in our life.  Dr. Friedman said the test shows an “entirely normal results of Olivia’s chromosomes”.  So that’s just perfect news.

I asked about her head (it’s got a funny shape to the back of it – almost like an egg attached to it). She said it’s completely normal and she’ll outgrow it.

Olivia got 4 shots today.

Olivia has to get the synagis shot to prevent RSV. She’ll start getting it in November and then every month until April. The first shot is administered at the Dr office and then after it’s taken care of by a home health care nurse who’ll come to the house.

She thinks Olivia might have a cow’s milk allergy that caused the blood in her stool last Friday evening. She told me to test it by having a lot of dairy and seeing if there is mucus or blood in her stool.

Dr. Friedman gave us a lead on someone to watch Olivia at home. We will start the process of following up on that once we have a date for Olivia’s next heart surgery which will be anytime in the next 3 months or so.