So … the next step has been scheduled.
February 26 (Happy Birthday Heidi – your niece is having a cath that day!). I find the date to be quite ironic as 2/27 is the anniversary of her diagnosis.
Kitty from CCMC called yesterday to schedule the Cath. We have to arrive at 7:30AM for a 9AM start. We’ll be going to the day surgery unit and Dr. Leopold will be doing the Cath.
They anticipate the cath will take an hour but she’ll be away from us around 2 – 3 hours (sob). We’re going to schedule a tour of the unit ahead of time for Olivia to see what it’s going to be like because it’s been years since we’ve done something like this. (sob) Her biggest concern is that the table is going to be too small and she’s going to fall off. She has this fear of their tables which I don’t understand but it’s cute in a sad kind of way.
We have a pre-Cath checkup scheduled with Dr. Friedman on Tuesday, February 5 at 3:30PM.
How we’re doing:
Mom and Dad – we’re holding it together the best we can. I have good days and then days like yesterday where we have to schedule something send me spiraling with anxiety and worry. I know she’s going to be fine but it doesn’t make it any easier to think about because it’s MY baby we’re talking about. I find myself comforting others – if people ask, I’ll give them the information and then I immediately tell them she’s going to be fine. I haven’t quite figured out if I do that as a defense mechanism or what. I should have taken more than one Psych class in college ;).
Olivia – she really has not a clue as to what is coming up. My poor baby girl. I guess it’s a good thing because innocence is bliss. Like I said before she’ll ask about the table size. We often talk about it right before bed (snuggle time) and I remind her that every time she’ll open her eyes after surgery I’ll be right there. I want her to know I won’t leave her there – that I’ll be in there with her as long as she is. She has come out with a few zingers that tear my heart is two … like when she told us she didn’t want another “zipper” (our words for her chest scar). We then explain to her how great she is going to feel AFTER surgery and that she can’t even imagine how incredible it’s going to be.
Maddie – We’ve made sure to answer any questions but she doesn’t ask much. Again, with her we’ve emphasized that Olivia will be able to do much more after surgery – like walk up the hill to Auntie’s house without needing a stroller; she’ll be able to run after Maddie without getting out of breath. Things that are “issues” now.
So that’s where we’re at for now. I don’t anticipate another update for a few weeks but who knows … we’ll keep you updated!