Tough month in the heart community

First and most happily I’ve updated the Pictures … so check them out! :)

Now on to the depressing part of the post: From what I’ve gathered, we’ve lost 5 children in the heart community in the past month or so. Three in a week. THREE!?! What is going on there? And that’s not even counting the 12 year old who died at Disney who had an undetected heart defect.
One that hit me pretty hard was a little boy who was a day younger than Olivia. His parents should be planning his second birthday, but instead, they’ve had to plan a funeral. It’s hard to stay positive and think “it can’t / won’t happen to us” when it’s happening at such a high rate lately. While I haven’t known these families personally, you can’t help but take each death very personally. Because that parent is living a nightmare that could very easily be ours.

Now back to the Disney death … I called it. As soon as I heard about the death, I said to Arnie “Heart defect – undetected”. God, I hate when I’m right about this stuff.
I’ll be calling CCMC on Wednesday to see about getting an appointment for Maddie with Dr. Heller. I just need to hear from her mouth that everything is ok – I need to see her four chambered heart working the way it was intended in order to relax.

Tonight I had my iPod on and was dancing with Olivia … and this song came on … I held her extra tight and danced her around the kitchen..

The Dance (Garth Brooks)

Looking back on the memory of
The dance we shared beneath the stars above
For a moment all the world was right
How could I have known you’d ever say goodbye


And now I’m glad I didn’t know
The way it all would end the way it all would go
Our lives are better left to chance I could have missed the pain
But I’d of had to miss the dance


Holding you I held everything
For a moment wasn’t I the king
But if I’d only known how the king would fall
Hey who’s to say you know I might have changed it all

And now I’m glad I didn’t know
The way it all would end the way it all would go
Our lives are better left to chance I could have missed the pain
But I’d of had to miss the dance


Yes my life is better left to chance
I could have missed the pain but I’d of had to miss the dance

I’ll take the dance any day … but worrying about the pain sometimes gets scary….

Happy Fourth Of July everyone! I promise the next entry will be more positive.

One thought on “Tough month in the heart community

  1. Hello Belfonti’s! Happy 4th to you, too. Miss Olivia gets more adorable every day. It was so nice to see you at the LH picnic and we hope for many more happy memories.

    As to Corbin, we too followed him on CP’s. He fought such a hard battle and as the hospital stay lengthened and the complications compiled, it was so hard to remain optimistic. I feel as if I’ve lost some (or maybe a lot) of my “innocence”. His family’s faith is so strong that the one bright side to this is their optimism for Corbin’s final destination with God. I’m trying to learn to accept that which I can not change.

    Best wishes for a happy 4th and huge early brithday wishes for your beautiful girls!

    With lots of heart hugs,
    Ruth, Dan, Zoe and Ewan

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