Today we attended our third Little Hearts picnic. It was so nice catching up with all our friends and making new ones.
There is nothing better than being around others who know exactly what you are going through. Your hopes; Your fears – even the ones deep down that you cannot voice outloud because they are *that* scary. These people get it because they have the same fears. It’s comforting. It’s a day where we’re all normal.
There’s nothing more beautiful that watching a child going to TOWN jumping in the moonbounce and then you notice her tag states she’s a heart transplant. Or seeing a beautiful little boy with rosy cheeks rolling down the dirt pile – knowing he just had his Fontan four weeks ago and he’s only been home 2 weeks. His dad says “Your mom wouldn’t be too happy to see you rolling in this” and it’s not because he’s four weeks post Fontan – but because he’s FILTHY!
Olivia had a great time! She actually got into the moon bounce and wouldn’t come out. I was freaking out thinking she’d be stepped on but somehow she avoided it and had a ball. She even made friends with an older (heart healthy) boy who held her hands so she could jump. Olivia got her face painted (a small heart on her cheek) and got a Winnie the Pooh balloon made by a clown. She played in the bubbles with her heart buddy Ewan.
Maddie also had a ball. She got a balloon hat; her face painted like a clown by a clown; she could have spent the entire day playing in the moon bounce. She and Olivia went on the playground slides over and over again. And Maddie caught up with her buddy Zoe (sister to Ewan) for their annual pinata hitting.
And of course Ruth (Ewan’s mom) and I had our annual chat about how lucky we are that the kids are so healthy and doing so well.
The most moving moments for me were when they called all the families over to the band and sang “You Raise Me Up” by Josh Groban and of course during the Picture Of Hope. Olivia got to sit on the bleachers all by herself this year. She’s come a LONG way baby!
Dr. Heller (our cardiologist) came to the picnic. She’s the first cardiologist from CCMC to attend.