It was a 10 week checkup but still.
Olivia now weighs 10 lbs, 3 oz and is 22.25″ long! She’s gained an entire pound in the last month.Â As far as charts go, she’s in the 40th percentile for height and weight which is perfect. Dr. Friedman said Olivia’s heart is allowing her body to grow as to what her genetic makeup wants her to be.
And speaking of genetics, we finally got the genetic test results back thanks to a lot of hard work and some magic by one of our very special angels in our life.Â Dr. Friedman said the test shows an “entirely normal results of Olivia’s chromosomes”.Â So that’s just perfect news.
I asked about her head (it’s got a funny shape to the back of it – almost like an egg attached to it). She said it’s completely normal and she’ll outgrow it.
Olivia got 4 shots today.
Olivia has to get the synagis shot to prevent RSV. She’ll start getting it in November and then every month until April. The first shot is administered at the Dr office and then after it’s taken care of by a home health care nurse who’ll come to the house.
She thinks Olivia might have a cow’s milk allergy that caused the blood in her stool last Friday evening. She told me to test it by having a lot of dairy and seeing if there is mucus or blood in her stool.
Dr. Friedman gave us a lead on someone to watch Olivia at home. We will start the process of following up on that once we have a date for Olivia’s next heart surgery which will be anytime in the next 3 months or so.
Olivia is growing like a weed.Â Her face is filling in nicely with a double chin. She is one solid little girl!Â She has lost that “newborn” look to her and looks more like a baby now.Â Her eyes are a deep blue and her hair still has a reddish tint to it. She is just a beauty.Â When she smiles, it just lights up the room.Â She is just starting to “talk” and loves “talking” to her big sister Maddie.
I’m back to work now so Arnie is staying home with Olivia during the day and working evenings three nights a week.Â Arnie’s really enjoying his time with his little girl and they’ve gotten into a nice routine that works for both of them.
Olivia is still up between one and two times per night.Â She teases us and will wake up one night at 4AM and then the next night is up at 1AM and again at 4AM.Â We’re hoping her sleeping pattern gets into a better routine soon. Her diet consists of 100% breast milk.
Arnie took Olivia for her followup with the surgeon yesterday. The incision area is healing wonderfully and at this point we are all set! He made the incision on a skin fold as to lessen the obviousness of the scar – which was a nice gesture. Looking at her stomach / chest area you wouldn’t know that the stomach incision was made at a later date than her chest “zipper”. They are both completely healed over.
They released us yesterday morning around 9:15AM. Olivia and I made it to church for 9:30AM mass (don’t ask how fast I drove, ok?)
The surgical resident admitted she probably was ready to eat on Friday when she pulled her tube out although it’s “highly unusual”. I said “We’re dealing with an unusual child who came home 7 days after heart surgery”.
We had a very good evening. She didn’t go to sleep until Midnight but slept straight thru minus a crying spell at 3:00AM.
Surgical resident came by around 7:30AM and approved feeding her – but only after the surgeon on call approved it. Dang these guys are skittish.
Surgeon on call stopped by at 8:45am and approved her feeding
She can have pedialyte for two feeds, then Breast milk at 50% (mixed w/ pedialyte) for two feeds. If she tolerates it well then she can have straight up breast milk. Once she’s eating well we can head home
She took just over 1 oz of cherry flavored pedialyte. The nurse told me not to push it b/c if she throws up we have to go back to square one (no food for 24 hrs).
We hope that we can go home tomorrow morning!
Surgeon stopped by. What a nice guy.
Olivia is doing great. He said we’ll definitely get her started on pedialyte tomorrow morning. And then breast milk on Sunday.
Very nice nurses as always.
Olivia had pulled out her own NG tube yesterday morning . The resident on the PICU said we could feed her so we gave her about 40ml breast milk which she loved.
The surgical resident had a heart attack when he found out we’d fed her and ordered the nose tube back in
They put it back in around 11AM and there wasn’t anything coming up which meant her intestines were working just fine (sometimes they stop for a few days thus the need for the tube to remove the bile from her stomach).
She had a very good day yesterday although she was VERY fussy because her belly was empty obviously – she’s on IV fluids so she’s not starving – just feeling funny with an empty belly.
She was passing a ton of gas throughout the day and had a bm around 4:00PM which is a huge step. Then again she had one after I left last night (Arnie stayed at the hospital while I went home w/ Miss Maddie).
This morning the surgical resident OK’ed removing the nose tube but ordered NO FOOD. So we most likely won’t be out of here tomorrow … I’m shooting for Sunday.
When I got here Olivia had been given an extensive bath and was looking all cozy and pink. They had removed her oxygen (was in her nose as well) and gotten rid of her nose tube.
Her oxygen levels were better without the tubes and she’s in the high 80’s (Better than she was reading prior to surgery)
Literally as I was typing up my last post the doctor walked in!
Olivia did fantastic. Very small incision. I asked if he saw anything “unusual” and he said he didn’t go looking for trouble.
She’s already breathing on her own (extubated) and we’re just waiting to see her!
She’ll have a nose tube for draining the bile until her intestines start working again (they stop working after “trauma” or surgery). Then she’ll be able to feed again.
He’ll be giving her tylenol rectally and little shots of morphine as needed.
Waiting on Olivia coming out of surgery…
They’ve finally opened the PICU waiting room and there’s a computer with internet access in it so I’m posting while waiting for them to let us know she’s out of surgery.
Let’s see … we had to arrive at 11:30AM – took two cars as Arnie will be heading home tonight with Maddie and we’ll be alternating nights at the hospital.
Olivia was fussy when we got here as she hadn’t eaten since 8:45AM. We didn’t bring in a pacifier or the diaper bag. Of course Olivia nearly had a “blow out” diaper when we arrived and cried most of the time.Â Bad, bad parents.
Tanya was our nurse in the day surgery unit. She checked Olivia’s vitals and put her in these PJ’s that were HUGE. She looked like a sumo wrestler. An adorable one.
Dr. Hechtman stopped in and apparently they don’t re-anchor her intestines but “spread them”. He said it’s confusing and he didn’t even understand why they stay spread.Â He will be operating with resident Dr. George Powlsides.
Anethesia doctors were Dr. McIsaac and Dr. Gerace. Dr. Gerace is a resident and actually remembered Olivia from her first surgery – he was present for it! I got all weapy knowing he was there again for her.
There was some confusion about where her chart was – because she got a new medical record # when she became Olivia (from Baby Girl).