PICU tour at CCMC

PICU Tour at CCMC

Megan was the tour guide for today – she works in the Child and Family Services Dept. She works in the PICU and will be there to help all of us deal with Olivia’s stay in the hospital.

In no particular order:

We covered the security topic. The important thing about the “situation” was that this child was not in the PICU. I felt better after talking to her even though she really had no answers about how / why it happened.

Computer access: There is a computer in the Chapel – which used to be the Family Waiting Area. There are also ones in different lounges on each floor. BUT, I can bring in my dad’s laptop and access the internet from Olivia’s bedside!

Family Rooms: There are 6 parent sleep rooms. They consist of a trundle bed, a small table, tv, vcr and telephone. The parent rooms all share two bathrooms which have full showers and a kitchen area that includes a microwave, fridge and toaster, etc. Nice setup.

You are assigned a room which is yours for your length of stay – you can lock your items in it and store things (i.e. the laptop, my purse). They recommend bringing in your own shampoo, etc.

There is a great craft room on the 8th floor. We are welcome to utilize it with Maddie when she is visiting.

Megan will assist us in preparing Maddie to see Olivia and also to talk to her afterwards. She is willing to allow Christopher to also visit her in the PICU and agreed it would help Maddie to cope if Christopher has seen what she has.

Each patient in the PICU has his / her own room. There is a rocking chair in there. We didn’t get a good look into one but did catch a glance of a child on a ventilator. That was really rough.

After Olivia has surgery, for the first few days she will be in a bed. This is done to allow the nurses easy access to all the tubing and wiring. Once she is off the ventilator, she would then be moved back to a crib.

Most nurses work 12 hour shifts, but there are a few who work 8 hours.

Mostly there is a 1:1 nurse to patient ratio. As Olivia gets stronger, the ratio may be 1:2 nurse to patients.

They are less strict than the NICU about parents having to leave if a procedure is being done, mostly because each child has their own room. The only reason she could see us having to leave is if they leave Olivia’s chest open after surgery and then need to close it up – because they would do that right in her room.

Overall, it was a very good meeting. We feel comfortable with the hospital, but seeing that little boy, it took both of our breath away for a second.

Level II ultrasound at Hartford Hospital

Level II ultrasound at Hartford Hospital

Today was our final level II ultrasound.

As we were waiting to be called into the U/S appt, there was another woman waiting with us. We started chatting. I could have sworn she was having twins but I didn’t ask. Turns out she was just having a rough pregnancy – diabetes before she got pregnant and now she is up to 4 shots of insulin a day!  Thank GOD I didn’t open my mouth and insert my foot!

I was really impressed with the office today – when we checked in they told us they were running a half hour late. At least we knew … and it turned out we only waited 15 minutes.

Sandra was the u/s technician. There was also a med student who asked to be present. Considering how “interesting” our case is, I really didn’t have the heart to turn her away.

Olivia looks FANTASTIC! She weighs 6 lbs, 12 oz already! They expect her to be about 8 lbs+ at delivery!

The doctor we saw was Dr. Borgida – he was the doctor we saw for our first u/s AFTER we found out. He was wonderful back then and was amazing today. We got some amazing views of Olivia’s heart and nothing’s changed. IMO, he spent a good amount of time on her heart because of the med student but I was happy to see it is still growing – even though it’s still F’ed up

He told us that he doesn’t believe Olivia has craniostenotosis (or whatever it’s called). Her head isn’t perfectly round but he said it normally would be VERY severe at this point and she’s not there.

I could have cried and hugged him at the same time. I kept thinking “I love this man!”

I requested they check my BP as my OB forgot this week – it was 92/70 and the woman who took it couldn’t believe it. “Perfect BP … I’m shocked! Especially for sitting up!”

Today’s appointment was JUST what I needed. Arnie and I went to lunch after (had time to kill before our 2pm tour of the PICU) and I kept saying to him that I felt like running around the parking lot with my arms raised screaming “WOOOOOOHHHHOOOOOOOO”. The “head thing” was really bothering me deep down. I’m so relieved!!!